Hi all loved ones! We've had an intense couple of days and I wanted to update you on what we have found. Jodi had a 3 hour MRI on Wednesday as well as an xray. It was a long wait to say the least! It was painful for Baba and I to help hold her still for her xray while she was crying. Not fun but as usual Jodi was such a brave soul and handled it incredibly well. They told us that she would be drowsy and grumpy from the anesthesia used during her MRI. She was neither but the same can't be said of Mama!! Everyone has been so kind to her.
Today was the toughest day. We met with her pediatric neurosurgeon at Baptist after he reviewed her MRI. We were saddened to learn that her condition is much more involved than we realized. Jodi has a very rare condition in which her spinal cord splits in 2 and is tethered (anchored down) at several places where it should not be. She also has many bony abnormalities as well as an area of probable spinal fluid that should not be there. They described her physical condition as "complicated" and unlike anything they had ever seen. Jodi is scheduled for surgery on May 22 and should be hospitalized for about 5 days. With her condition there are so many unknowns. Fred and I were pretty floored but will work through it.
Here are the incredible parts that make us sure that God is in control. Noone can believe that Jodi is so high functioning with all of her abnormalities. She has such a sweet spirit and cooperated so well today. The nurse practitioner told us that the operating room will be full when they do Jodi's surgery because it is a teaching hospital and her case is so rare and unusual. We took that to mean that there will be alot of expertise and eyes looking out for her during the procedure. Our pediatric doctor Dr. Douglass called this evening to check on Jodi and get an update on her condition. He was very kind and encouraging. We also know that we will be surrounded by prayer and thank you in advance for your faithfulness. We will continue to update as we know more. She is scheduled for a CT scan next Thursday because the surgeon wants further information. There is some question about how the bone has formed in her spine. Scary stuff so we have to keep giving it back to God when the fear takes over. We remain confident that Jodi was meant to be our daughter and we can't imagine life without her. Love to you all and God bless.
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Loving Lord... please be with these wonderful parents and this brave little girl while these dedicated physicians, together with the Great Physician, work to correct little Jodi's spine. Jodi has captured the heart of so many of us. Hear all of our prayers as we lift her and her loved ones up to you, the One that can heal. In Jesus' name.... Amen.
ReplyDeleteThank you for being so open in sharing the road ahead of you! At church we were just studying this passage and so I wanted to share it with you as it meant a lot to me and I thought that it might to you too!
ReplyDeleteJohn 9 1-3:1-As he went along, he saw a man blind from birth. 2-His disciples asked him, "Rabbi, who sinned, this man or his parents, that he was born blind?" 3-"Neither this man nor his parents sinned," said Jesus, "BUT THIS HAPPENED SO THAT THE WORK OF GOD MIGHT BE DISPLAYED IN HIS LIFE."
God has and will continue to display His glory through Jodi's life!
With love and prayers,
Jessica Crisp
Susan and Fred,
ReplyDeleteWe are sorry to hear that her condition is so complicated. We will keep you all in our thoughts and prayers. Please keep us all updated and know that if you need anything ar all, we are here.
Love, Kat, Billy, Emily, Drew, and Alex
Dear Susan, Fred and Jodi,
ReplyDeleteAll day I have been trying to find the words to express the emotions and feelings that washed over me while reading about Jodi's medical condition. Please know that she is in God's hands and has a very special angel named Bill watching over her now. We know that you have a large church family to lend their support but please do not forget that you have another family in town that would be glad to help in any way they can. If you need anything at all please call.
Ann